System-Level Approaches to Identify Children with Health Complexity and Develop Models for Complex Care Management
OPIP is leading efforts to support health systems to develop and implement standardized methods to identify children with health complexity and to then use this information to engage communities and consider best match care coordination strategies. The unique population of CYSHCN for this project are children with Health Complexity that could be impacted by a complex care management program meant to improve health outcomes and address health care costs. Children with health complexity will be defined as those who:
- Are Medically Complex as defined by the Pediatric Medical Complexity Algorithm (PMCA), with a priority focus on children identified with “complex chronic disease” OR children with “non-complex chronic disease”, AND
- Are Socially Complex as defined by The Center of Excellence on Quality of Care Measures for Children with Complex Needs (COE4CCN) as “A set of co-occurring individual, family or community characteristics that can have a direct impact on health outcomes or an indirect impact by affecting a child’s access to care and/or a family’s ability to engage in recommended medical and mental health treatments”. Specifically, KPNW will be defining children as socially complex if the system-level data they have indicates the presence of one or more of the 14 factors identified by COE4CCN as predictive of a high cost health care event (e.g. emergency room use).
These efforts are supported through grants from the Lucile Packard Foundation for Children’s Health (LPFCH) and contract from the Oregon Health Authority to provide technical assistance to Coordinated Care Organizations, networks of all types of health care providers (physical health care, addictions and mental health care and dental care providers) who work together in their local communities to serve people who receive health care coverage under the Oregon Health Plan (Medicaid).
LPFCH Grant #1
The first grant, conducted August 2017 – March 2019, aimed to inform Health Systemson novel and generalizable approaches to identify and design Complex Care Management programs for children with Health Complexity. This effort engaged 1) Kaiser Permanente Northwest (KPNW), 2) Oregon Health Authority (OHA), and 3) Coordinated Care Organizations (CCOs).
Kaiser Permanente Northwest: OPIP facilitated KPNW on the development of a pediatric team-based care (TBC) program in order to summarize learnings related to: 1) use of KPNW-level medical and social complexity data to identify children with health complexity for TBC; and 2) tools for administering a pediatric TBC program. Click here for more information.
Oregon Health Authority: OPIP facilitated OHA on novel methods for using state-level medical and social complexity data for identifying children with health complexity. Additionally, OPIP will facilitate OHA on using this population-level information to inform state-level policies and contracting. OPIP will then facilitate OHA on how to share child-level data about health complexity with the CCOs it contracts with for publicly insured children, in order to inform their pediatric complex care management programs. Click here for more information.
Coordinated Care Organizations: OPIP facilitated conversations with CCOs around how to use the OHA data for identifying children with health complexity, and around care management methods, tools, and strategies from KP that can be applied. Regional variations used by CCOs given differing internal resources, community resources, and patient demographics, will be examined. Click here for more information.
A specific effort was made to engage stakeholders from across the state in order to provide guidance and input on methods and processes for this work. Below you will find links to slides and webinar recordings of stakeholder meetings held to date.
- Click here for meeting agenda
- Click here for an ebook of supplemental meeting materials
- Click here for Complex Care Management Resources
LPFCH Grant #2
The second grant, which ran from May 2019 to December 2022, was meant to support the meaningful use of population-level health complexity data to drive improved policies and investments in care and health management supports for children with health complexity.
The project supported OPIP to provide targeted technical assistance to the Oregon Health Authority to identify specific policies, investments, and contracting requirements that can impact children with medical complexity. OPIP provided technical assistance to OHA to focus on how the CCO 2.0 policies related to spending on social determinants of health, health equity, and health disparities; value-based payments focused on children, behavioral health services for parents and young children; and ways to fully implemented Systems of Care and wrap around services can be leveraged to focus on children with medical complexity.
The project further supported OPIP and OHA to share nationally the data analytic model for children’s health complexity, the compelling findings that demonstrate the magnitude and number of children with health complexity, and how the data model can be adopted by other State Medicaid agencies (seven states received technical assistance), given we know that what is measured is what is focused on.
Finally, the funding from this project was used to complement the funding OPIP received from OHA to provide deeper and more robust technical assistance to a limited number of State/Medicaid programs nationally and locally to health systems to use the data. OPIP will share methods on how patients can be engaged, connect CCOs to state-level patient advocacy groups, and will provide facilitation supports for meetings with patients held about the improvement change concepts and models identified.
Products of the grant
- The work on Children’s Health Complexity was recently published in the journal BMJ Innovations! For a deeper look into the health complexity work, please see our peer reviewed article.
- Updated children’s health complexity reports for 2021 have been posted to the Transformation Center website.
- Statewide, CCO-level and county-levels are now available
- Child-level data files will be sent to the CCOs through Business Objects
- For more information about the reports and the updates and enhancements to the data, please see this cover letter from the OHA chief medical officer and director of health analytics
- Contact: OHA Office of Health Analytics at [email protected]
- National Webinar and Summary Brief:
- Health System Strategies to Ensure a Focus on Children with Health Complexity. Click here to view a summary brief on how health complexity data can be used to implement four option strategies to ensure a focus on children with health complexity.
- December 7, 2022: This webinar described how health systems can identify children with health complexity and provided actionable strategies and models to use this information to improve services and supports for families.